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Schervier's 2nd Annual
Conference
—on Pain and
Pain Management!

Keela Herr, Pain Conference Keynote Speaker
Pain Management Conference
Reveals that Unrelieved, Persistent Pain in Older Adults Causes Severe and
Preventable Problems
Disturbing facts about unrelieved persistent pain in older adults came to
light at a conference held by the Schervier Center for Research in Geriatric
Care, part of Bon Secours New York Health System. The conference was held
at Manhattan College on June 4th, and was attended by more than
150 professionals and paraprofessionals interested in alleviating pain in
older adults.
Entitled “Assessment and Treatment of Pain in Cognitively Impaired Older
Adults,” the content of the conference is highly relevant to maintaining the
quality of life of elderly persons. Unfortunately, pain is a common problem
among the elderly, and when left under-treated or untreated, can result in a
substantially decreased quality of life. Unremitting pain can result in
sleep disturbances, malnutrition, physical decline, falls, depression,
anxiety, impaired cognition, delirium and other serious problems, including
higher health care utilization costs.
It is estimated that 49% to 83% of all nursing home residents have
substantial pain that is under-detected and under-treated. For the 25% to
33% of nursing home residents who are known to have moderate to severe pain
on a daily basis, approximately one-fourth do not receive analgesia, i.e.,
pain relieving medications. The problem is even worse for individuals with
dementia who cannot express their pain verbally.
You may wonder why pain remains under-treated and untreated. According to
the keynote speaker, internationally renowned pain expert Keela Herr, PhD,
RN, FAAN, AGSF, Professor and Chair of Adult and Gerontology Nursing in the
College of Nursing at the University of Iowa, pain is often inadequately
recognized. Second, it is not clearly understood by many in the health
professions that pain is whatever the person who has the pain says it is.
The ability to report one’s own pain is considered the Gold Standard in
pain assessment. Asking verbal adults to rate their pain using various pain
scales is helpful. In cognitively impaired and non-verbal older adults,
it should be assumed that pain is present if there is reason to suspect it,
as in pathological conditions and common problems or procedures known to
cause pain, such as surgery, wound care, rehabilitation activities,
positioning/turning, blood draws, heel sticks, a history of persistent pain,
or the presence of diseases known to cause pain (e.g., osteoarthritis and
cancer). Other problems that may be causing discomfort should be ruled out
or treated, such as infection or constipation.
How can you tell if a cognitively impaired older adult is experiencing pain
if she cannot speak? When the older adult has lost the ability to
self-report pain, observation of changes in her behavior can indicate the
presence of pain. Behaviors like groaning, crying out or fidgeting may be
present. As pain worsens, these negative behaviors increase, and as it
lessens, the behaviors decrease. In nursing homes, certified nursing
assistants, physical and occupational therapists, dietary and housekeeping
staff all come in close and frequent contact with residents. Together with
family members, these are the people who can best notice behavioral
changes. Is the person in pain grimacing, moaning, grunting, rocking,
crying, or frowning? Is she restless, pacing, rocking, refusing to eat or
breathing noisily? Is she irritable, agitated, disruptive, aggressive,
resistant or withdrawn? Each of these behaviors may indicate pain in
cognitively impaired older adults, and familiarity with, combined with
observation of the elder is key to discovering and treating the pain.
The goals of care in managing pain in older adults include: providing
comfort, improving sleep, increasing functional abilities, reducing
pain-related mood disorders, and others. Older adults with dementia are
candidates for non-pharmacologic pain management strategies and for
pharmacologic therapy. Non-drug interventions fall into two categories:
physical and cognitive/psychosocial. Physical interventions include:
exercise, cold/heat, massage, positioning, whirlpool baths, and
acupuncture/acupressure. Cognitive/psychosocial interventions include:
talking/listening, guided imagery, meditation/prayer, deep breathing,
distraction, humor and spiritual counseling.
Several additional speakers provided a wealth of information during the
day-long conference.
Terry Altilio, MSW, ACSW, LCSW, Social Work Coordinator in the Department of
Pain Medicine and Palliative Care at Beth Israel Medical Center, spoke about
“Psychosocial and Environmental Interventions for Treating Pain.” She
discussed the importance of context in determining how to deal with a
person’s pain. We should determine who the person “is,” both culturally and
spiritually. What are his interests, abilities, and preferences? These
components of the person’s personality will influence how he, or his family
member/agent, will want pain managed. Altilio also noted that those caring
for persons with dementia should be mindful of the common human needs which
bond the individual, family members and caregivers, including the need for
privacy, respect, warmth, companionship, gentle treatment, and a calm,
familiar environment. Providing for these needs will help reduce the
likelihood of pain and insure better outcomes of pain management
strategies. She stressed that non-pharmacologic pain interventions should
also be considered, like music, massage, distraction, prayer, and even hugs.
Steven L. Grenell, MD, Clinical Assistant Professor of Neurology at the
Albert Einstein College of Medicine and Attending Neurologist at Montefiore
Medical Center, debunked myths about the treatment of pain. In the past, it
was believed that the administration of opioid medications for pain
treatment could easily lead to addiction. Now it is more widely understood
that opioids are safe and effective when used properly. Under-treated pain,
said Grenell, impairs mood, sleep and healing, extends length of stay in
hospitals and sub-acute facilities, and reduces patient satisfaction with
quality of care. Sadly, he added, it is historical, political and
sociocultural – not medical – factors that explain why safe and
powerful analgesics have long been bypassed in favor of therapeutic agents
that are more toxic and less effective. Grenell ended his talk by
discussing the fact that people contemplate suicide because their untreated
pain is intolerable.
Jeffrey N. Nichols, MD, Vice President for Medical Services of the Cabrini
Eldercare Consortium spoke about “Ethical Issues in Pain Management.” He
asked the audience, “Whoever wants to die in pain, please raise your hand.”
Not surprisingly, not one hand was raised. Nichols began his interactive
discussion with the statements: “Pain is bad; pain-free is good; identifying
patients who are in pain and making it go away must be good; allowing
patients who cannot speak for themselves to die in pain must be bad.” Using
these premises, Nichols subsequently involved conference participants in a
dialogue based on a case study of a terminally ill patient. The discussion
included multiple ethical principles, like privacy, autonomy, beneficence
and non-maleficence, and how these principles influence ethical
decisionmaking. He also discussed the principle of double intent, which
applies when an action to be taken has both beneficial and potentially
harmful effects. An excellent example of double intent occurs in situations
where, in attempting to manage severe terminal pain effectively, sedation or
death may actually occur.
Susan Caccappolo, MSSW, LCSW, Palliative Care Coordinator of the Schervier
Center for Research in Geriatric Care, discussed “Surmounting the Barriers
to Effective Pain Management.” She spoke about the challenges to effective
pain management found within the general population, among physicians,
within nursing home populations, and specifically among cognitively impaired
nursing home populations. She enlisted conference participants in
describing some of the specific challenges they face in attempting to manage
pain, and sought their collective wisdom in identifying some solutions for
those challenges. She cited legal bases for treating pain, such as the
Patient Self-Determination Act (1990) which encourages nursing home
residents to complete Advance Directives, and the US Supreme Court ruling
(1997) that included the statement that high doses of opioid medications for
pain management is appropriate palliative care. Caccappolo ended her
presentation with the anonymous quote: “Pain is inevitable. Suffering is
optional.”
Schervier Home Health Care
is Ranked Among Top 25 % of U.S. Home Health Providers for
2007

Bon Secours New York
Health System is pleased to announce that the
Schervier Home Health Care Program has
been named to the 2007 HomeCare Elite,
a compilation of the most successful
Medicare-certified home health care providers in the United States. This
annual review identifies the top 25% of agencies, ranked by an analysis of
performance measures in quality outcomes, quality improvement and financial
performance. The data used for
analysis was compiled from publicly available information.
“Being noted as one
of the top performers in the nation in the very competitive home health care
environment shows that Schervier
Home Health Care is dedicated to
quality and performance,” says Barbara Knott, Vice President of Home Care
Services for Bon Secours Health
System, Inc.
Leslie Reed, Director
of the
Schervier Home Health Care Program, says,
“Helping to improve the lives of the most vulnerable members of our
population is one of the founding principles of our mission, which is to
bring compassion to health care and to be ‘good Help’ to those in need.”
The 2007 HomeCare
Elite is the only performance recognition of its kind in the home health
industry. The 2007 HomeCare Elite
is brought to the industry by OCS, Inc., the leading provider of healthcare
informatics and DecisionHealth, publisher of home care’s most respected
independent newsletter Home Health Line. The entire list of the 2007
HomeCare Elite agencies can be viewed by visiting the OCS web site at
www.ocsys.com.
Buena Ayuda Para Personas de
Edad:
South Bronx Center Celebrates First Anniversary!

Buena Ayuda Para Personas de Edad
held its one-year anniversary on
January 29, 2008 at
631 Melrose Avenue at 152nd Street in the South Bronx. It is
funded by the Bon Secours Mission Fund to provide assistance, information
and referrals to help seniors and others learn about entitlements and
community resources for which they are eligible, and about organizations
that can assist them. The Buena Ayuda storefront has been very successful,
providing a series of
bilingual seminars on health care, nutrition, entitlements, wellness,
management of chronic health conditions, long term care options, and a
variety of helpful topics throughout the year.
Buena Ayuda is
managed by Community Senior Advocate Harry Hernandez, MSW, a Bronx social
worker, with the assistance of Omelfi Garcia. Stop in for a visit! They can
be reached at 718-292-6620.
SCHERVIER RESEARCH NEWS
Dr. Paulette
Sansone Wins AAHSA's 2007 Excellence in Research and Education Award
Bon Secours New York
Health System and the Schervier Center for Research in Geriatric Care are
delighted to announce that Paulette Sansone, PhD, has been named the 2007
national winner of the Excellence in Research and Education Award from the
American Association of Homes and Services for the Aging (AAHSA).
According to William
L. Minnix, Jr., President and CEO of AAHSA, and Chair, Margaret M. Mullan,
in their letter to Dr. Sansone, “This award recognizes your extensive work
as a principal investigator of many significant research projects focusing
on dementia, resident decision making, advance directives, palliative care,
and more. Through your efforts, the Schervier Center for Research in
Geriatric Care has received numerous grants for important research.”
The award letter
continues: “Your leadership of a groundbreaking study of palliative care
helped to bring palliative care issues to the forefront of elder care. In
addition, the Schervier Center, under your leadership, has provided
customized education and training to countless health care professionals and
paraprofessionals in a variety of settings. Your work truly exemplifies the
critical importance of research and the sharing of best practices in
improving the quality of life for older adults. Again, congratulations on
this well-deserved recognition. We look forward to honoring you at AAHSA’s
Annual meeting & Exposition in Orlando, Oct. 21-24, 2007.”
Schervier Geriatric Research Center’s Conference,
“Advanced Dementia as a Terminal Illness,” a Huge Success
Full house at Schervier's first Research
Conference
The Schervier Center for Research in
Geriatric Care held its first conference on April 18th on the Bon
Secours New York Health System campus to great acclamation. Over 220
professionals and paraprofessionals from a great variety of healthcare
disciplines and organizations serving the elderly attended. The topic,
“Advanced Dementia as a Terminal Illness: Translating Theory into Everyday
Practice,” is particularly relevant and timely, since five million people in
the United States now suffer from the illness, according to the Alzheimer’s
Association, which says that by
2050, the number of people effected
is expected to reach 16 million—more than the current combined populations
of New York, Los Angeles, Chicago & Houston.
from
left: Drs. Volicer, Ahronheim, Blandford
The keynote speaker was Ladislav
Volicer, M.D., Ph.D., a world-renowned expert in dementia care who
established one of the first Special Care Units for the care and study of
patients with dementia. His topic was “Enhancing Quality of Life in Advanced
Dementia.” Dr. Volicer recently retired as the Clinical Director of the
Geriatrics Research Education Clinical Center at E.N. Rogers Memorial
Veterans Hospital and as Professor of Pharmacology and Psychiatry. The
conference’s other speakers were Judith C. Ahronheim, M.D., Professor
of Medicine and Chief of the Division of Geriatric Medicine at Downstate
Medical Center, who discussed “End-of-Life Treatments in Advanced Dementia:
Myths and Realities;” Dr. Gerald Blandford, former Medical Director
of the Loeb Center at Montefiore Medical Center, whose presentation was
about “Failure to Eat is a Predictable, Irreversible, Terminal Event in End
Stage Dementia;” and Alice Herb, J.D., LL.M.,
Associate at Law,
Assistant Clinical Professor of Family Practice, Downstate Medical Center,
and Visiting Professor, Sarah Lawrence College, whose topic was “End-of-Life
Care: Ethical and Legal Perspectives.”
The Panel Moderator was Frank Maselli,
M.D., an attending physician at Schervier Nursing Care Center, the Allen
Pavilion
and St. Joseph’s Medical Center, Assistant Professor of Family Practice at
Downstate Medical Center and 2001 New York State Family Physician of the
Year, who spoke about his “Experiences Treating Advanced Dementia Patients.”
The conference was approved for Continuing Education credits by NAB/NCERS,
ATRA, NYSNA CDR, and NYSNA.
The Schervier Center for Research in
Geriatric Care was established in January, 2006. The mission of the Center
is to improve the quality of life for elders by obtaining grants for new and
innovative programs, conducting research that will contribute to the field
of aging, hosting professional conferences that will promote education and
collaboration among those serving the elderly and providing consultation and
technical assistance to others in the field. The Schervier Center for
Research is a member of the Bon Secours New York Health System.
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Musical Memories Program Expands the
Spiritual Journey for Residents with Dementia
Sr.
Elizabeth Butler & residents enjoy inspirational music together.
Bon Secours New York Health System has received a $15,000 Bon Secours
Ministry grant funded by the Sisters of Bon Secours to expand its unique,
successful Musical Memories Program which helps Schervier Nursing Care
Center
residents with dementia tap into “the spirit”
through music. The grant provides Schervier with yet another way of
manifesting its mission of bringing compassion to health care, providing
“good help to those in need,” and creating a more humane world.
The Musical Memories Program began in 2005 when Sister Sheila Moroney,
Director of Pastoral Care for Schervier Nursing Care Center, formed the
Multicultural Religious and Inspirational Music Hour. Each week, Pastoral
Care plays a number of recordings with religious, spiritual or inspirational
undertones and discusses the music’s themes with 15-20 residents with
dementia. The
purpose of the program is to draw on the residents’ memories and highlight
their spiritual feelings through music—by singing old favorites and newer
inspirational songs, and by encouraging discussion and memory sharing about
the songs’ themes of love, peace, joy or light. In addition to singing, the
residents are encouraged to sway, clap and dance to the music—activities
that provide a reprieve from the effects of dementia in a relaxing
environment with interaction and physical contact that renews hope by
rekindling positive memories.
The Bon Secours Ministry grant will
expand this innovative program to include 150 residents with dementia
throughout the facility. Residents’ loved ones will be asked to identify
significant songs from the residents’ past, including specific life events
they may associate with these songs. The program’s unique combination
of religion, spirituality, and music is expected to increase cognitive
engagement and social participation by renewing or strengthening residents’
religious or spiritual beliefs and by increasing family and loved ones’
involvement in the residents’ lives. The program as another way of
demonstrating Schervier’s philosophy of Maintaining Personhood for all
dementia residents regardless of their level of impairment, because “There
is still a person in there.”
Dementia is characterized by changes in
memory, communication, and personality that often result in confusion and
isolation which in turn, may lead to depression and disruptive behavior.
Music, on the other hand, is tied to events in people’s lives and may serve
as a vehicle for memory-impaired older adults to connect with their past,
decrease agitation and wandering, and increase participation.
Schervier’s Feeding Program Grant to
Enhance Lives of Advanced Dementia Residents
The
Schervier Center for Research
in Geriatric Care is pleased to announce a $40,000 grant from the Fan Fox &
Leslie R. Samuels Foundation for a 12-month project entitled The SPOON
Program: Seniors Partaking of Oral Nourishment. The SPOON
Program will establish a volunteer assisted feeding program for advanced
dementia residents and will provide a comprehensive education program for
physicians, clinical staff, certified nursing assistants (CNAs) and
appropriate family members.
The program’s goals are to: a) establish
a new improved standard of care for advanced dementia residents in nursing
facilities; b) increase the number of dementia residents placed on
palliative and hospice care; c) decrease the number of unnecessary feeding
tubes for residents at the end of life; d) increase resident socialization
and companionship; and e) reduce needless pain and suffering. The program
will also increase family awareness about the terminal nature of dementia,
empower their decision-making and enhance their satisfaction with care. The
intended outcome will be an enhanced quality of life for advanced dementia
residents by increasing one-on-one relationships, allowing for the pleasure
of tasting food, and reducing the risk for restraints and infections due to
tube feeding.
While great strides have been made in the
past few years to improve end-of-life care, many nursing home residents with
dementia approach death with feeding tubes in place, despite research that
advises little to no benefit from this form of treatment. One of the
primary reasons cited for the lack of attention paid to quality end-of-life
care is the fact that advanced dementia is not seen as a terminal
illness. Yet progression into terminal dementia occurs when these residents
becomes totally dependent for care; when they can no longer ambulate even
with assistance, and when the ability to express themselves verbally is
lost. At this stage, they can no longer feed themselves, lose interest
in food, hold food in their mouths, and/or lose the ability to swallow. When
this occurs, the inclination is to insert a feeding tube. But empirical
literature does not support tube feeding as a way to prolong life, prevent
pressure sores, improve functional status, prevent aspiration, prevent
malnutrition, or improve quality of life; in fact, it can increase patient
suffering, increase use of restraints, and can even result in death.
The Schervier Center for Research in
Geriatric Care will be responsible for this project under Director, Dr.
Paulette Sansone, who has received numerous research and education grants,
including one from the Altman Foundation for a groundbreaking study on
palliative care in long-term care; and a major grant from the NYS Department
of Health to form a consortium of six nursing homes to design and educate
staff about palliative care with dementia residents. The end product
of the SPOON grant will be a training manual that will be distributed to all
nursing homes in NYS. |